Caregivers' assessment of meaningful and relevant clinical outcome assessments for Sanfilippo syndrome
- Location
-
Deutsche Nationalbibliothek Frankfurt am Main
- ISSN
-
2509-8020
- Extent
-
Online-Ressource
- Language
-
Englisch
- Notes
-
online resource.
- Bibliographic citation
-
Caregivers' assessment of meaningful and relevant clinical outcome assessments for Sanfilippo syndrome ; volume:6 ; number:1 ; day:25 ; month:4 ; year:2022 ; pages:1-12 ; date:12.2022
Journal of patient-reported outcomes ; 6, Heft 1 (25.4.2022), 1-12, 12.2022
- Creator
-
Porter, Katherine Ackerman
O’Neill, Cara
Drake, Elise
Andrews, Sara M.
Delaney, Kathleen
Parker, Samantha
Escolar, Maria L.
Montgomery, Stacey
Moon, William
Worrall, Carolyn
Peay, Holly L.
- Contributor
-
SpringerLink (Online service)
- DOI
-
10.1186/s41687-022-00447-w
- URN
-
urn:nbn:de:101:1-2022070721482978944655
- Rights
-
Open Access; Der Zugriff auf das Objekt ist unbeschränkt möglich.
- Last update
-
15.08.2025, 7:37 AM CEST
Data provider
This object is provided by:
Deutsche Nationalbibliothek. If you have any questions about the object, please contact the data provider.
Deutsche Nationalbibliothek. If you have any questions about the object, please contact the data provider.
Associated
- Porter, Katherine Ackerman
- O’Neill, Cara
- Drake, Elise
- Andrews, Sara M.
- Delaney, Kathleen
- Parker, Samantha
- Escolar, Maria L.
- Montgomery, Stacey
- Moon, William
- Worrall, Carolyn
- Peay, Holly L.
- SpringerLink (Online service)
Other Objects (12)
Establishing Clinically Meaningful Change on Outcome Assessments Frequently Used in Trials of Mild Cognitive Impairment Due to Alzheimer’s Disease
Word vector embeddings hold social ontological relations capable of reflecting meaningful fairness assessments
Spectral embedding finds meaningful (relevant) structure in image and microarray data
Qualitative research with patients and caregivers of patients with PIK3CA related overgrowth spectrum: content validity of clinical outcome assessments
Assessments und Outcome-Parameter bei axialer Spondyloarthritis
Meaningful Talk
Meaningful talk
Meaningful affordances
Meaningful affordances
Developing Meaningful Metrics
Meaningful climate science
A Meaningful life
Establishing Clinically Meaningful Change on Outcome Assessments Frequently Used in Trials of Mild Cognitive Impairment Due to Alzheimer’s Disease
Word vector embeddings hold social ontological relations capable of reflecting meaningful fairness assessments
Spectral embedding finds meaningful (relevant) structure in image and microarray data
Qualitative research with patients and caregivers of patients with PIK3CA related overgrowth spectrum: content validity of clinical outcome assessments
Assessments und Outcome-Parameter bei axialer Spondyloarthritis
Meaningful Talk
Meaningful talk
Meaningful affordances
Meaningful affordances
Developing Meaningful Metrics
Meaningful climate science
A Meaningful life
Establishing Clinically Meaningful Change on Outcome Assessments Frequently Used in Trials of Mild Cognitive Impairment Due to Alzheimer’s Disease
Word vector embeddings hold social ontological relations capable of reflecting meaningful fairness assessments
Spectral embedding finds meaningful (relevant) structure in image and microarray data
Qualitative research with patients and caregivers of patients with PIK3CA related overgrowth spectrum: content validity of clinical outcome assessments
Assessments und Outcome-Parameter bei axialer Spondyloarthritis
Meaningful Talk
Meaningful talk
Meaningful affordances
Meaningful affordances
Developing Meaningful Metrics
Meaningful climate science