Conducting Research With an Adolescent Diagnosed With Fragile X Syndrome
Abstract: In this article I address the reflexive nature of research undertaken when I investigated the presence of resilience found in an adolescent girl diagnosed with fragile X syndrome. The highlights of this article include specific challenges I experienced when conducting research with this adolescent and how I have adapted the process accordingly. These challenges involve the planning and preparation before data commenced; the influence of sensory integration, behavioral, cognitive and language characteristics of fragile X syndrome on an adolescent girl; and the aspects of ethical and rigorous research. I have also included recommendations such as guidelines for other researchers interested in conducting a similar study with adolescents affected by fragile X syndrome. I hope that with this article, other researchers would be provided with a better understanding of how to proceed with research that involves individuals with disabilities and more specifically, individuals diagnosed with
- Alternative title
-
Jugendliche mit diagnostiziertem Fragile-X-Syndrom: eine Fallstudie
- Location
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Deutsche Nationalbibliothek Frankfurt am Main
- Extent
-
Online-Ressource
- Language
-
Englisch
- Notes
-
Veröffentlichungsversion
begutachtet (peer reviewed)
In: Forum Qualitative Sozialforschung / Forum: Qualitative Social Research ; 18 (2017) 2 ; 22
- Event
-
Veröffentlichung
- (where)
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Mannheim
- (when)
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2017
- Creator
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Weber, Chantel Lynette
- DOI
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10.17169/fqs-18.2.2694
- URN
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urn:nbn:de:0114-fqs1702102
- Rights
-
Open Access; Open Access; Der Zugriff auf das Objekt ist unbeschränkt möglich.
- Last update
-
25.03.2025, 1:47 PM CET
Data provider
Deutsche Nationalbibliothek. If you have any questions about the object, please contact the data provider.
Associated
- Weber, Chantel Lynette
Time of origin
- 2017
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CXCR4-directed PET/CT in patients with newly diagnosed neuroendocrine carcinomas
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