Journal article | Zeitschriftenartikel
Quality of life of family caregivers of people with Down Syndrome
Objective: to analyze the perception of parents/caregivers of people with Down syndrome on quality of life. Methods: It is a qualitative study, which used for data collection semi-structured interviews with 10 caregiver parents of people with Down syndrome. To analyze the data, we used the content analysis technique. Results: It was observed that caregivers are mothers over the age of 30, who declared themselves as racially mixed (Pardo in Portuguese), live with a partner, practice some type of physical activity and attend any educational institution. Moreover, they had as main occupation the caregiver role. Caregivers reported that access to leisure; health; family relationships; general welfare; Material and rights were the factors that influence the quality of life. Conclusion: it was concluded that caregiver parents of people with Down syndrome had different views on the quality of life.
- Alternative title
-
Qualidade de vida de cuidadores familiares de pessoas com Síndrome de Down
Calidad de vida de cuidadores familiares de personas con Síndrome de Down
- ISSN
-
2175-5361
- Extent
-
Seite(n): 4826-4832
- Language
-
Englisch
- Notes
-
Status: Veröffentlichungsversion; begutachtet (peer reviewed)
- Bibliographic citation
-
Revista de Pesquisa: Cuidado é Fundamental Online, 8(3)
- Subject
-
Soziologie, Anthropologie
Soziale Probleme und Sozialdienste
Medizinsoziologie
soziale Probleme
Eltern
Betreuung
Wahrnehmung
Lebensqualität
geistige Behinderung
Pflegeperson
- Event
-
Geistige Schöpfung
- (who)
-
Moreira, Ramon Missias
Oliveira, Bruno Gonçalves de
Cruz, Diego Pires
Bomfim, Eliane dos Santos
Camargo, Climene Laura de
Sales, Zenilda Nogueira
- Event
-
Veröffentlichung
- (when)
-
2016
- DOI
- URN
-
urn:nbn:de:0168-ssoar-53728-8
- Rights
-
GESIS - Leibniz-Institut für Sozialwissenschaften. Bibliothek Köln
- Last update
-
21.06.2024, 4:26 PM CEST
Data provider
This object is provided by:
GESIS - Leibniz-Institut für Sozialwissenschaften. Bibliothek Köln. If you have any questions about the object, please contact the data provider.
GESIS - Leibniz-Institut für Sozialwissenschaften. Bibliothek Köln. If you have any questions about the object, please contact the data provider.
Object type
- Zeitschriftenartikel
Associated
- Moreira, Ramon Missias
- Oliveira, Bruno Gonçalves de
- Cruz, Diego Pires
- Bomfim, Eliane dos Santos
- Camargo, Climene Laura de
- Sales, Zenilda Nogueira
Time of origin
- 2016
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DNA Methylation Analysis of Ribosomal DNA in Adults With Down Syndrome
Trisomy 21 : what we can learn from people with Down syndrome : 2000 people and their neuropsychological findings
Caregivers of palliative patients: measurement of burden and psychological intervention
Development of the family stigma stress scale (FSSS) for detecting stigma stress in caregivers of people with mental illness
Face‐to‐face versus telephone‐based cognitive‐behavioral therapy for family caregivers of people with dementia
Quality of life of family caregivers of people with Down Syndrome
Assessing the burden on caregivers of MECP2 duplication syndrome
Clinical perspectives in the management of Down syndrome
Profile of family caregivers of elderly at home
Profile of family caregivers of elderly at home
Psychotherapeutic support for family caregivers of people with dementia : the Tele.TAnDem manual
Communication with cancer patients: the perspective of caregivers versus non-caregivers in Iran
DNA Methylation Analysis of Ribosomal DNA in Adults With Down Syndrome
Trisomy 21 : what we can learn from people with Down syndrome : 2000 people and their neuropsychological findings
Caregivers of palliative patients: measurement of burden and psychological intervention
Development of the family stigma stress scale (FSSS) for detecting stigma stress in caregivers of people with mental illness
Face‐to‐face versus telephone‐based cognitive‐behavioral therapy for family caregivers of people with dementia
Quality of life of family caregivers of people with Down Syndrome
Assessing the burden on caregivers of MECP2 duplication syndrome
Clinical perspectives in the management of Down syndrome
Profile of family caregivers of elderly at home
Profile of family caregivers of elderly at home
Psychotherapeutic support for family caregivers of people with dementia : the Tele.TAnDem manual
Communication with cancer patients: the perspective of caregivers versus non-caregivers in Iran
DNA Methylation Analysis of Ribosomal DNA in Adults With Down Syndrome
Trisomy 21 : what we can learn from people with Down syndrome : 2000 people and their neuropsychological findings
Caregivers of palliative patients: measurement of burden and psychological intervention
Development of the family stigma stress scale (FSSS) for detecting stigma stress in caregivers of people with mental illness