Quality of life of family caregivers of people with Down Syndrome

Journal article | Zeitschriftenartikel

Objective: to analyze the perception of parents/caregivers of people with Down syndrome on quality of life. Methods: It is a qualitative study, which used for data collection semi-structured interviews with 10 caregiver parents of people with Down syndrome. To analyze the data, we used the content analysis technique. Results: It was observed that caregivers are mothers over the age of 30, who declared themselves as racially mixed (Pardo in Portuguese), live with a partner, practice some type of physical activity and attend any educational institution. Moreover, they had as main occupation the caregiver role. Caregivers reported that access to leisure; health; family relationships; general welfare; Material and rights were the factors that influence the quality of life. Conclusion: it was concluded that caregiver parents of people with Down syndrome had different views on the quality of life.

Angaben zum Objekt

• Weitere Titel: Qualidade de vida de cuidadores familiares de pessoas com Síndrome de Down ; Calidad de vida de cuidadores familiares de personas con Síndrome de Down
• ISSN: 2175-5361
• Umfang: Seite(n): 4826-4832
• Sprache: Englisch
• Anmerkungen: Status: Veröffentlichungsversion; begutachtet (peer reviewed)

Verweise und Beziehungen

• Erschienen in: Revista de Pesquisa: Cuidado é Fundamental Online, 8(3)

Klassifikation und Themen

• Thema: Soziologie, Anthropologie ; Soziale Probleme und Sozialdienste ; Medizinsoziologie ; soziale Probleme ; Eltern ; Betreuung ; Wahrnehmung ; Lebensqualität ; geistige Behinderung ; Pflegeperson

Beteiligte, Orts- und Zeitangaben

• Ereignis: Geistige Schöpfung
• (wer): Moreira, Ramon Missias ; Oliveira, Bruno Gonçalves de ; Cruz, Diego Pires ; Bomfim, Eliane dos Santos ; Camargo, Climene Laura de ; Sales, Zenilda Nogueira
• Ereignis: Veröffentlichung
• (wann): 2016

Weitere Informationen

• DOI: https://doi.org/10.9789/2175-5361.2016.v8i3.4826-4832
• URN: urn:nbn:de:0168-ssoar-53728-8
• Rechteinformation: GESIS - Leibniz-Institut für Sozialwissenschaften. Bibliothek Köln
• Letzte Aktualisierung: 21.06.2024, 16:26 MESZ