Reparative Design: A Study of Collective Practices for Generating and Redistributing Care Online

Abstract: Online content produced by sick bodies, outside of clinical trials, is increasingly studied as real world evidence. US policy and biomedical companies are designing ways to make patient input legible and useful to their evidence-based medical system. My design study suggests an ethic of repair that might learn from the political agency of people with chronic autoimmune conditions. It brings feminist materialist studies into dialogue with two collective care groups who devise tools for reciprocal, collaborative intra-action. Their tools offer different ways to study illness online and negotiate boundaries (of bodies/expertise/space). Together they articulate the values and risks in generating embodied knowledge and redistributing data through digital communities

Object Details

• Alternative title: Reparative Design: Eine Studie kollektiver Praktiken zur Generierung und (Um-)Verteilung von Care im Internet
• Location: Deutsche Nationalbibliothek Frankfurt am Main
• Extent: Online-Ressource
• Language: Englisch
• Notes: Veröffentlichungsversion ; begutachtet (peer reviewed) ; In: FZG - Freiburger Zeitschrift für GeschlechterStudien ; 24 (2018) 1 ; 71-87

Contributors, Places and Time

• Event: Veröffentlichung
• (where): Mannheim
• (who): SSOAR, GESIS – Leibniz-Institut für Sozialwissenschaften e.V.
• (when): 2018
• Creator: Senavitis, Karisa

Further information

• DOI: 10.3224/fzg.v24i1.05
• URN: urn:nbn:de:0168-ssoar-77726-6
• Rights: Open Access; Der Zugriff auf das Objekt ist unbeschränkt möglich.
• Last update: 25.03.2025, 1:49 PM CET