- Standort
-
Deutsche Nationalbibliothek Frankfurt am Main
- ISSN
-
1756-0500
- Umfang
-
Online-Ressource
- Sprache
-
Englisch
- Anmerkungen
-
online resource.
- Erschienen in
-
A first description of the Colombian national registry for rare diseases ; volume:10 ; number:1 ; day:26 ; month:10 ; year:2017 ; pages:1-7 ; date:12.2017
BMC Research Notes / Biomed Central; 10, Heft 1 (26.10.2017), 1-7, 12.2017
- Urheber
-
Mateus, Heidi Eliana
- Beteiligte Personen und Organisationen
-
Pérez, Ana María
Mesa, Martha Lucía
Escobar, German
Gálvez, Jubby Marcela
Montaño, José Ivo
Ospina, Martha Lucía
Laissue, Paul
SpringerLink (Online service)
- DOI
-
10.1186/s13104-017-2840-1
- URN
-
urn:nbn:de:1111-2017121911964
- Rechteinformation
-
Der Zugriff auf das Objekt ist unbeschränkt möglich.
- Letzte Aktualisierung
-
15.08.2025, 07:40 MESZ
Datenpartner
Dieses Objekt wird bereitgestellt von:
Deutsche Nationalbibliothek. Bei Fragen zum Objekt wenden Sie sich bitte an den Datenpartner.
Deutsche Nationalbibliothek. Bei Fragen zum Objekt wenden Sie sich bitte an den Datenpartner.
Beteiligte
- Mateus, Heidi Eliana
- Pérez, Ana María
- Mesa, Martha Lucía
- Escobar, German
- Gálvez, Jubby Marcela
- Montaño, José Ivo
- Ospina, Martha Lucía
- Laissue, Paul
- SpringerLink (Online service)
Ähnliche Objekte (12)
Diagnostic delay in rare diseases: data from the Spanish rare diseases patient registry
National Rare Diseases Registry System (NRDRS): China’s first nation-wide rare diseases demographic analyses
Research on Rare Diseases in Germany – The GAIN Registry: a registry for individuals with congenital multi-organ autoimmune diseases
A population-based registry as a source of health indicators for rare diseases: the ten-year experience of the Veneto Region’s rare diseases registry
Operational description of rare diseases: a reference to improve the recognition and visibility of rare diseases
Population-specific facial traits and diagnosis accuracy of genetic and rare diseases in an admixed Colombian population
Demographics and current diagnostic practices of rare kidney diseases : insights from the European rare kidney disease registry
Estimating mortality in rare diseases using a population-based registry, 2002 through 2019
The Tuscany Regional Network for rare diseases: from European Reference Networks’ experience to registry based organisation and management model for rare diseases
Description and cross-sectional analyses of 25,880 adults and children in the UK National Registry of Rare Kidney Diseases Cohort
Rare Diseases Network
Correction: Estimating mortality in rare diseases using a population-based registry, 2002 through 2019
Diagnostic delay in rare diseases: data from the Spanish rare diseases patient registry
National Rare Diseases Registry System (NRDRS): China’s first nation-wide rare diseases demographic analyses
Research on Rare Diseases in Germany – The GAIN Registry: a registry for individuals with congenital multi-organ autoimmune diseases
A population-based registry as a source of health indicators for rare diseases: the ten-year experience of the Veneto Region’s rare diseases registry
Operational description of rare diseases: a reference to improve the recognition and visibility of rare diseases
Population-specific facial traits and diagnosis accuracy of genetic and rare diseases in an admixed Colombian population
Demographics and current diagnostic practices of rare kidney diseases : insights from the European rare kidney disease registry
Estimating mortality in rare diseases using a population-based registry, 2002 through 2019
The Tuscany Regional Network for rare diseases: from European Reference Networks’ experience to registry based organisation and management model for rare diseases
Description and cross-sectional analyses of 25,880 adults and children in the UK National Registry of Rare Kidney Diseases Cohort
Rare Diseases Network
Correction: Estimating mortality in rare diseases using a population-based registry, 2002 through 2019
Diagnostic delay in rare diseases: data from the Spanish rare diseases patient registry
National Rare Diseases Registry System (NRDRS): China’s first nation-wide rare diseases demographic analyses
Research on Rare Diseases in Germany – The GAIN Registry: a registry for individuals with congenital multi-organ autoimmune diseases
A population-based registry as a source of health indicators for rare diseases: the ten-year experience of the Veneto Region’s rare diseases registry
Operational description of rare diseases: a reference to improve the recognition and visibility of rare diseases
Population-specific facial traits and diagnosis accuracy of genetic and rare diseases in an admixed Colombian population
Demographics and current diagnostic practices of rare kidney diseases : insights from the European rare kidney disease registry
Estimating mortality in rare diseases using a population-based registry, 2002 through 2019
The Tuscany Regional Network for rare diseases: from European Reference Networks’ experience to registry based organisation and management model for rare diseases
Description and cross-sectional analyses of 25,880 adults and children in the UK National Registry of Rare Kidney Diseases Cohort
Rare Diseases Network