The Tuscany Regional Network for rare diseases: from European Reference Networks’ experience to registry based organisation and management model for rare diseases
- Standort
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Deutsche Nationalbibliothek Frankfurt am Main
- Umfang
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1 Online-Ressource.
- Sprache
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Englisch
- Erschienen in
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The Tuscany Regional Network for rare diseases: from European Reference Networks’ experience to registry based organisation and management model for rare diseases ; volume:18 ; number:1 ; day:13 ; month:10 ; year:2023 ; pages:1-16 ; date:12.2023
Orphanet journal of rare diseases ; 18, Heft 1 (13.10.2023), 1-16, 12.2023
- Urheber
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Pieroni, Federica
Marrucci, Sonia
Pietro, Linda Di
Berni, Cecilia
Scaletti, Cristina
- Beteiligte Personen und Organisationen
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SpringerLink (Online service)
- DOI
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10.1186/s13023-023-02947-4
- URN
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urn:nbn:de:101:1-2024020112445624367255
- Rechteinformation
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Open Access; Der Zugriff auf das Objekt ist unbeschränkt möglich.
- Letzte Aktualisierung
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15.08.2025, 07:33 MESZ
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Beteiligte
- Pieroni, Federica
- Marrucci, Sonia
- Pietro, Linda Di
- Berni, Cecilia
- Scaletti, Cristina
- SpringerLink (Online service)
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