An innovative and collaborative partnership between patients with rare disease and industry-supported registries: the Global aHUS Registry
- Location
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Deutsche Nationalbibliothek Frankfurt am Main
- ISSN
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1750-1172
- Extent
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Online-Ressource
- Language
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Englisch
- Notes
-
online resource.
- Bibliographic citation
-
An innovative and collaborative partnership between patients with rare disease and industry-supported registries: the Global aHUS Registry ; volume:11 ; number:1 ; day:21 ; month:11 ; year:2016 ; pages:1-9 ; date:12.2016
Orphanet journal of rare diseases ; 11, Heft 1 (21.11.2016), 1-9, 12.2016
- Contributor
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Woodward, Len
Johnson, Sally
Walle, Johan Vande
Beck, Joran
Gasteyger, Christoph
Licht, Christoph
Ariceta, Gema
SpringerLink (Online service)
- DOI
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10.1186/s13023-016-0537-5
- URN
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urn:nbn:de:1111-201612116866
- Rights
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Der Zugriff auf das Objekt ist unbeschränkt möglich.
- Last update
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14.08.2025, 10:50 AM CEST
Data provider
This object is provided by:
Deutsche Nationalbibliothek. If you have any questions about the object, please contact the data provider.
Deutsche Nationalbibliothek. If you have any questions about the object, please contact the data provider.
Associated
- Woodward, Len
- Johnson, Sally
- Walle, Johan Vande
- Beck, Joran
- Gasteyger, Christoph
- Licht, Christoph
- Ariceta, Gema
- SpringerLink (Online service)
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A collaborative comparison of international pediatric diabetes registries
The global aHUS registry: methodology and initial patient characteristics
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Eculizumab treatment in paediatric patients diagnosed with aHUS after haematopoietic stem cell transplantation: a HSCT-TMA case series from Japanese aHUS post-marketing surveillance
Ahus
Ahus
Charakterisierung von Patienten mit atypischem hämolytisch-urämischen Syndrom (aHUS) in Deutschland : Daten aus dem globalen aHUS-Register
Recource Registries
A Collaborative Partnership between the Multicenter Handoff Collaborative and an Electronic Health Record Vendor
eRegistries: Electronic registries for maternal and child health
Konsulate - Länder: Ahus
Pregnancy-triggered atypical hemolytic uremic syndrome (aHUS): a Global aHUS Registry analysis
A collaborative comparison of international pediatric diabetes registries
The global aHUS registry: methodology and initial patient characteristics
The global aHUS registry: methodology and initial patient characteristics
Eculizumab treatment in paediatric patients diagnosed with aHUS after haematopoietic stem cell transplantation: a HSCT-TMA case series from Japanese aHUS post-marketing surveillance
Ahus
Ahus
Charakterisierung von Patienten mit atypischem hämolytisch-urämischen Syndrom (aHUS) in Deutschland : Daten aus dem globalen aHUS-Register
Recource Registries
A Collaborative Partnership between the Multicenter Handoff Collaborative and an Electronic Health Record Vendor
eRegistries: Electronic registries for maternal and child health