The Tuscany Regional Network for rare diseases: from European Reference Networks’ experience to registry based organisation and management model for rare diseases

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Location: Deutsche Nationalbibliothek Frankfurt am Main

Extent: 1 Online-Ressource.

Language: Englisch

Bibliographic citation: The Tuscany Regional Network for rare diseases: from European Reference Networks’ experience to registry based organisation and management model for rare diseases ; volume:18 ; number:1 ; day:13 ; month:10 ; year:2023 ; pages:1-16 ; date:12.2023
Orphanet journal of rare diseases ; 18, Heft 1 (13.10.2023), 1-16, 12.2023

Creator: Pieroni, Federica
Marrucci, Sonia
Pietro, Linda Di
Berni, Cecilia
Scaletti, Cristina

Contributor: SpringerLink (Online service)

DOI: 10.1186/s13023-023-02947-4

URN: urn:nbn:de:101:1-2024020112445624367255

Rights: Open Access; Der Zugriff auf das Objekt ist unbeschränkt möglich.

Last update: 15.08.2025, 7:33 AM CEST

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Pieroni, Federica
Marrucci, Sonia
Pietro, Linda Di
Berni, Cecilia
Scaletti, Cristina
SpringerLink (Online service)

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The Tuscany Regional Network for rare diseases: from European Reference Networks’ experience to registry based organisation and management model for rare diseases

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