The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project

Object Details

• Location: Deutsche Nationalbibliothek Frankfurt am Main
• ISSN: 2056-7529
• Extent: Online-Ressource
• Language: Englisch
• Notes: online resource.

References and Relationships

• Bibliographic citation: The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project ; volume:7 ; number:1 ; day:1 ; month:2 ; year:2021 ; pages:1-15 ; date:12.2021 ; Research involvement and engagement ; 7, Heft 1 (1.2.2021), 1-15, 12.2021

Contributors, Places and Time

• Creator: Hamakawa, Nao ; Kogetsu, Atsushi ; Isono, Moeko ; Yamasaki, Chisato ; Manabe, Shirou ; Takeda, Toshihiro ; Iwamoto, Kazumasa ; Kubota, Tomoya ; Barrett, Joe ; Gray, Nathanael ; Turner, Alison ; Teare, Harriet ; Imamura, Yukie ; Yamamoto, Beverley Anne ; Kaye, Jane ; Hide, Michihiro ; Takahashi, Masanori P. ; Matsumura, Yasushi ; Javaid, Muhammad Kassim ; Kato, Kazuto
• Contributor: SpringerLink (Online service)

Further information

• DOI: 10.1186/s40900-021-00253-6
• URN: urn:nbn:de:101:1-2021032521104145441079
• Rights: Open Access; Der Zugriff auf das Objekt ist unbeschränkt möglich.
• Last update: 14.08.2025, 10:47 AM CEST