Data Publication for Personalised Health Data : A New Publication Standard Introduced by NFDI4Health

Abstract: Health data collected in clinical trials and epidemiological as well as public health studies cannot be freely published, but are valuable datasets whose subsequent use is of high importance for health research. The National Research Data Infrastructure for Personal Health Data (NFDI4Health) aims to promote the publication of such health data without compromising privacy. Based on existing international standards, NFDI4Health has established a generic information model for the description and preservation of high-level metadata describing health-related studies, covering both clinical and epidemiological studies. As an infrastructure for publishing such preservation metadata as well as more detailed representation information of study data (e.g. questionaries and data dictionaries), NFDI4Health has developed the German Central Health Study Hub. Content is either harvested from existing distributed sources or entered directly via a user interface. This metadata makes health studies .... https://www.tib-op.org/ojs/index.php/CoRDI/article/view/392

Angaben zum Objekt

• Standort: Deutsche Nationalbibliothek Frankfurt am Main
• Umfang: Online-Ressource
• Sprache: Englisch

Verweise und Beziehungen

• Erschienen in: Data Publication for Personalised Health Data ; volume:1 ; year:2023 ; Proceedings of the conference on research data infrastructure ; 1 (2023)

Beteiligte, Orts- und Zeitangaben

• Urheber: Fluck, Juliane ; Golebiewski, Martin ; Darms, Johannes

Weitere Informationen

• DOI: 10.52825/cordi.v1i.392
• URN: urn:nbn:de:101:1-2023120114455327881575
• Rechteinformation: Open Access; Der Zugriff auf das Objekt ist unbeschränkt möglich.
• Letzte Aktualisierung: 15.08.2025, 07:25 MESZ