Disease monitoring programs of rare genetic diseases: transparent data sharing between academic and commercial stakeholders

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Location: Deutsche Nationalbibliothek Frankfurt am Main

ISSN: 1750-1172

Extent: Online-Ressource

Language: Englisch

Notes: online resource.

Bibliographic citation: Disease monitoring programs of rare genetic diseases: transparent data sharing between academic and commercial stakeholders ; volume:16 ; number:1 ; day:20 ; month:3 ; year:2021 ; pages:1-3 ; date:12.2021
Orphanet journal of rare diseases ; 16, Heft 1 (20.3.2021), 1-3, 12.2021

Creator: Lochmüller, Hanns
Ramirez, Antonio Nino
Kakkis, Emil

Contributor: SpringerLink (Online service)

DOI: 10.1186/s13023-021-01687-7

URN: urn:nbn:de:101:1-2021050615532952391589

Rights: Open Access; Der Zugriff auf das Objekt ist unbeschränkt möglich.

Last update: 14.08.2025, 10:51 AM CEST

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Lochmüller, Hanns
Ramirez, Antonio Nino
Kakkis, Emil
SpringerLink (Online service)

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Disease monitoring programs of rare genetic diseases: transparent data sharing between academic and commercial stakeholders

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Other Objects (12)

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