Assessing the impact on caregivers caring for patients with rare pediatric lysosomal storage diseases: development of the Caregiver Impact Questionnaire

Location
Deutsche Nationalbibliothek Frankfurt am Main
ISSN
2509-8020
Extent
Online-Ressource
Language
Englisch
Notes
online resource.

Bibliographic citation
Assessing the impact on caregivers caring for patients with rare pediatric lysosomal storage diseases: development of the Caregiver Impact Questionnaire ; volume:3 ; number:1 ; day:23 ; month:7 ; year:2019 ; pages:1-14 ; date:12.2019
Journal of patient-reported outcomes ; 3, Heft 1 (23.7.2019), 1-14, 12.2019

Creator
Harrington, Magdalena
Hareendran, Asha
Skalicky, Anne
Wilson, Hilary
Clark, Marci
Mikl, Jaromir
Contributor
SpringerLink (Online service)

DOI
10.1186/s41687-019-0140-3
URN
urn:nbn:de:101:1-2019121708153831752984
Rights
Open Access; Der Zugriff auf das Objekt ist unbeschränkt möglich.
Last update
14.08.2025, 10:48 AM CEST

Data provider

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Associated

  • Harrington, Magdalena
  • Hareendran, Asha
  • Skalicky, Anne
  • Wilson, Hilary
  • Clark, Marci
  • Mikl, Jaromir
  • SpringerLink (Online service)

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