Experiences of caregivers of children with spinal muscular atrophy participating in the expanded access program for nusinersen: a longitudinal qualitative study
- Location
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Deutsche Nationalbibliothek Frankfurt am Main
- ISSN
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1750-1172
- Extent
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Online-Ressource
- Language
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Englisch
- Notes
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online resource.
- Bibliographic citation
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Experiences of caregivers of children with spinal muscular atrophy participating in the expanded access program for nusinersen: a longitudinal qualitative study ; volume:15 ; number:1 ; day:29 ; month:7 ; year:2020 ; pages:1-9 ; date:12.2020
Orphanet journal of rare diseases ; 15, Heft 1 (29.7.2020), 1-9, 12.2020
- Creator
- Contributor
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SpringerLink (Online service)
- DOI
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10.1186/s13023-020-01477-7
- URN
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urn:nbn:de:101:1-2020092522191179789140
- Rights
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Open Access; Der Zugriff auf das Objekt ist unbeschränkt möglich.
- Last update
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14.08.2025, 10:50 AM CEST
Data provider
Deutsche Nationalbibliothek. If you have any questions about the object, please contact the data provider.
Associated
- Kiefer, Petra
- Kirschner, Janbernd
- Pechmann, Astrid
- Langer, Thorsten
- SpringerLink (Online service)